Wednesday, October 28, 2020

The Failures of Modern Psychotropic Medications, Yet No Alternatives Exist

As published in the November 2020 issue of Buffalo Healthy Living 

Bipolar Disorder Challenges
Medications, Compliance, Side-Effects

 

By Helaine Sanders, LMSW, JD

 

I live with bipolar disorder (bipolar), a mental health condition that causes episodes of mania, depression, and severe mood swings that can result in serious consequences, including psychiatric hospitalization. Having lived with bipolar for the past 30 years, I can tell you that it’s not easy. Managing bipolar requires lifelong maintenance, professional treatment, and coping with sometimes overwhelming side effects of medications.

 

My bipolar manifests itself with episodes of depression and mania, and the side effects of my medications require that I plan my day carefully. An antipsychotic mood stabilizer I take causes excessive sleepiness rendering me unable to perform any activity after taking it. If I force myself to stay awake at bedtime, I become so tired I am unable to fall asleep immediately. When this happens, I divert my attention by flexing my leg muscles in order to fall asleep. I must also sleep an average of 8.5 hours each night in order to function properly. Not getting enough sleep results in loss of balance, and I have slipped in the shower several times because of this. My side effects prevent me from being able to work a paid job. Thus, I make it a point to participate in volunteer activities, which I schedule for afternoons or early evenings.

 

On top of all of this, the anti-anxiety medication I take to feel more relaxed exacerbates my sleepiness, so I have to make sure that I take it at the appropriate time each day. The anti-seizure medication I require to stabilize my moods makes me so dizzy that I must take it in a lower dose. Last year, when my son suffered a prolonged illness, my doctor prescribed an anti-depressant which has worked well. However, its side effect is anxiety, so when I attended a meeting several weeks after taking the anti-depressant, I found myself interrupting others and ended up crying in the hallway. The incident underscored how hard I have to work to control my reactions.

 

Most of the drugs I take also cause constipation and weight gain. Medications to control these symptoms are especially challenging while raising two active teenagers. Despite all of this, I have come to learn that my medications help me, and I am stabilized to the point where I only see my psychiatrist for medication-management. However, it is my greatest wish for others who have loved ones struggling with bipolar to understand the monumental effort it takes to manage it. Simple daily life activities most people take for granted like sleeping long enough, eating healthfully, and compliance in taking medication at the appropriate time require a great deal of thought and planning, along with a commitment to being compliant.

 

Helaine Sanders has an MSW and JD. She teaches a class to local refugees, and is the author of the blog, www.JanesPlace.org, which focuses on mental health issues and other topics relating to stigma

 

Monday, August 24, 2020

Let Me Speak - Zack

Personal Note: I’m really tired of saying “OK” when people ask me how I’m doing. I’m not really OK; I’m struggling. I’m doing fine professionally, but personally, I’m sad, lonely, anxious and isolated...and I’m an introvert. (Yes, introverts can get lonely). I know others are struggling as well. As alone as I may feel most of the time, I know that I’m not actually alone in this.


Sometimes I see these memes pop across my feed to promote mental health awareness. Maybe they do some good; I certainly hope so. But I think what might matter more is to just reduce the stigma of depression, anxiety and other mental health issues. People need to be open about their struggles without fear of judgment.

For those that don’t know me well, I might appear to be thriving. Social media can be deceptive. We try to eat well, and I’m always coming up with ideas for weekend adventures. But it’s hard. I feel drained and on edge. And I just don’t know how to recharge my batteries.

I honestly don’t want anyone to worry about me. I just need to deal with my own crap in my own way. I may reach out to some of you, and while I really do appreciate others touching base with me from time to time, right now I’m just kind of spent. I’m grateful to have enough work to provide me with energy, focus and the opportunity to help other people deal with their problems. But immersing myself in work is not a long-range solution for me; in fact, it’s not a great short-term solution either.

The point of this post, to the extent there is one, is just to encourage anyone else who might be struggling to reach out. Sometimes I don’t have the energy to actually talk, but I’ll always listen.

Wednesday, August 5, 2020

Let Me Speak - Hannah's Mother

I cannot be with her in person, but today is a very special day for the Duke family. This is the day, seven years ago, that Hannah Duke decided to recover from anorexia. I’ll post her reasons for choosing this date next. Of course, I hope everyone knows that it is a long and painful journey to get to that point, and afterwords, recovery is not linear.
Even now, she needs to be careful to maintain her mental health regarding her eating disorder. It can be triggered (mentally), not in behavior, by so many things. She lives in NYC, ground zero for eating disorders. Most of her friends have disordered eating. Many of her friends take 3-4 exercise classes A DAY, EVERY DAY, wearing their Apple watches to check their calories burned each hour.
Anorexic fashion models people the streets. And everywhere, people talk about food ad nauseum. Not in terms of how delicious something is, but is it “healthy," is it “good” food ,etc. all euphemisms for diet culture whether they know it or not. That would not trigger you maybe, but it sets off alarms in the minds of someone with disordered eating. I usually write how happy we are about Hannah’s recovery, but today, I thought it might be better to talk about her recovery. Hannah volunteers for NEDA (National Eating Disorder Association), talking to people who have called the hotline. She has become a resource for many friends who have this mental illness.
If you know somebody who needs help or someone to talk to, please let me know me and I’ll give them Hannah’s number.